Supporting Siblings: Helping Brothers and Sisters Cope When a Child Has Hydrocephalus or Epilepsy
So much attention goes to the diagnosed child. Here’s what siblings are often feeling quietly, and practical ways to make sure they feel seen too.
Caregiver Support
Caring for a child or family member with a neurological condition is one of the most demanding roles a person can take on — and one of the least talked about. The emotional weight, the appointment schedules, the school meetings, the uncertainty: all of it falls on caregivers who are already stretched thin.
This section exists for you — the parent sitting in the waiting room, the grandparent who has become the primary carer, the sibling who quietly holds everything together. You will find articles on caregiver burnout and how to recognise it, how to communicate your child’s needs to schools and medical teams, how to explain a neurological diagnosis to other children, and how to find support when the system feels overwhelming.
Brain Care Path was founded by a parent of a child with hydrocephalus. This section is written with that lived experience at its heart, and reviewed by medical professionals who understand what families go through. You are not alone in this — and these articles are here to make the journey a little more manageable.
Caregiver Guilt After a Child’s Neurological Diagnosis: What Parents Deserve to Hear
For a long time, I counted the days. Twenty-eight of them, to be exact. Twenty-eight days between the first fever and the diagnosis. I knew it was not entirely rational — the doctors had not told me to suspect brain involvement. The guilt came anyway. It came at 3am.
Living With a VP Shunt: A Guide for Families
Living with a VP shunt – what daily life is really like, which activities are safe, MRI rules, talking to schools, and the warning signs that matter.
15 Questions to Ask Your Neurosurgeon About Hydrocephalus
Twenty minutes to understand what was happening inside my son’s brain, what the surgery would involve, what the risks were, what recovery looked like, and what the rest of his life might hold. This article is every question I wish I had asked.
Hydrocephalus and School: Getting the Right Support
Hydrocephalus and school – what teachers need to know, how IEP and 504 plans work, useful accommodations, and a script for your first meeting.
Caregiver Burnout: Recognising and Managing Stress
Caregiver burnout is a state of physical, emotional, and mental exhaustion that can occur when you give more than you are able to give. It is particularly common among parents and family members caring for someone with a neurological condition such as hydrocephalus, epilepsy, or another chronic brain condition. Burnout does not happen overnight — it builds gradually. Persistent exhaustion, a sense of hopelessness, withdrawing from friends and family, losing interest in things you once loved — these are not signs of weakness. They are signs that you have been carrying too much, for too long, without enough support. This article is for you — the person who puts everyone else first, and forgets to ask for help.